Elma Dieppa wonders if her cousin Helen Casillas would still be alive
today if she had been more aware of how her weight contributed to her
diabetes.
"She refused to take care
of herself by not watching what she ate or exercising," Dieppa wrote in
a blog post honoring the woman she describes as the "life of the party"
-- funny, beautiful and genuine.
Casillas died of a heart attack at age 44.
Although Casillas lived
with diabetes for years and worked in the medical field, her perception
of her own disease was skewed, Dieppa said. Casillas told her cousin
that the doctor wanted to take an aggressive approach to her weight
loss, but Casillas didn't believe she was obese.
"This is the problem
within the Hispanic community," Dieppa wrote on the blog. "We love our
curves, but the line between beautiful and deadly curves is blurred."
In
a 2010 study,
Abbey Berenson and her colleagues surveyed 1,076 Hispanic women who
went to public health clinics in Texas about their weight. The
researchers found about 25% of the overweight Hispanic women perceived
their weight as "normal," while only 15% of non-Latino white women did.
"Hispanic and
African-American women were more likely to consider their weight normal
when in fact they were overweight," said Berenson, a professor at the
University of Texas Medical Branch.
Helen Casillas died of a heart attack at age 44.
Latinos overall are also
less likely to lose weight and "more vulnerable to cardiovascular
disease risk factors and other obesity related diseases," the study
authors wrote.
For example, diabetes affects close to 25.8 million people in the United States, according to the
Centers for Disease Control and Prevention
-- about 8.3% of the general population. But the debilitating disease
disproportionately affects Hispanics, almost double those of non-Latino
whites, according to the
American Diabetes Association.
Unfortunately, diabetes
isn't the only disease causing concern in the Latino community.
Hispanics are also disproportionately affected by obesity and stroke,
according to Dr. Helen Troncoso, who serves as a health and wellness
consultant in New York.
Although stroke rates in
the general population have declined dramatically over the last decade,
Latinos are still more likely to experience a stroke compared to other
ethnic groups. Particularly among Mexican-Americans -- the largest
subgroup of Hispanics in the United States -- stroke is the leading
cause of disability and third leading cause of death. Overall,
Mexican-Americans suffer 34% more from this disease than non-Hispanic
whites, according to
a 2013 study published in the Annals of Neurology journal.
Experts say these health
disparities can be attributed to many causes, but chief among them is a
lack of access to quality health care.
The U.S. Department of Health and Human Services estimates
1 out of every 3 Hispanics
doesn't have health insurance. About half of whites are covered through
an employer-sponsored health plan, compared to 28% of Hispanics,
according to a Gallup Poll.
"Right now, many Latinos
are unable to manage the costs for preventative care," Troncoso said,
"and will often develop secondary conditions that can be even more
serious because they could not manage their chronic conditions with
proper treatment."
Once the Affordable Care
Act goes into effect on January 1, it should ease the stress for many
Hispanics who have lower-paying jobs that don't offer health insurance.
Cultural factors also play a role in putting the Hispanic community at risk for cardiovascular diseases.
Latinos are raised to be
self-reliant, which may be the reason 42% of them say they've had "zero
visits" to a medical provider. It was the ethnic group least likely to
use prescription medicine in 2010,
according to the U.S. Census Bureau.
"But with some lifestyle
adjustments, like switching to a healthier diet and getting regular
exercise, Latinos can drastically change their health issues," Troncoso
said.
At their core, authentic
Latino dishes include fresh fruits, herbs and beans, all of which are
healthy. But with immigration and acculturation to the United States
often comes a change in eating behaviors, such as cooking fewer meals at
home, eating larger portions, preparing foods differently, and buying
more cheap and convenient fast foods loaded with sodium, fat and sugar.
Because food and family
play such an important role in
the Latino community, organizations like the National Council for La
Raza are focusing their efforts on implementing more healthy shopping
programs like the "Comprando Rico y Sano" (Buying Delicious and Healthy)
to help Hispanics make healthier and more economical choices when
grocery shopping.
Photos: Notable Hispanics in medicine
"Familism is very strong
in the Latino culture," said Manuela McDonough, program manager for the
Institute for Hispanic Health at the National Council of La Raza. "The
act of sitting down at the dinner table is more important than the
actual food."
Many Latino parents feel guilty about putting their own health needs above those of their families,
according to the American Diabetes Association. They feel their time and money could be better spent than using it for preventive care.
In an effort to break
down this mindset, the diabetes association has a Latino Initiatives
health campaign called Por tu familia — or "for your family" --
encouraging Latinos to stay healthy if they want to be there for their
families.
While these efforts to
help educate Latinos about lifestyle changes will help, Dr. Joel
Zonszein, director of the Clinical Diabetes Center at Montefiore Medical
Center, said the health care system also needs to change so physicians
don't struggle to get their patients the treatments they deserve.
"For each patient I see,
I have to spend at least 20 minutes on the phone with insurance
companies begging them to approve the proper diabetes medication for my
patients, and I don't get reimbursed for that time," said Zonszein.
"Unfortunately, Obamacare will not improve this condition."
While the Affordable
Care Act may leave something to be desired from physicians, Dieppa hopes
that with widespread access to health care, Latinos around the country
will better educate themselves about their health and heed the warnings
of their doctors.
Because knowing that Helen Casillas' death could have been prevented hurts more than anything else.
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